In the May Bank Holiday, Poynton Sports Club, located in East Cheshire hosted a Beer Festival and 6-a-side Football Tournament. Stafford Rainwater Systems entered a team into the competition raising funds for the local sports club. However, there was a more poignant and powerful cause close to the hearts of everyone associated with the club. The words to follow are from Mike and Lucy, Ollie’s Mum and Dad. Please support this cause in any way possible.
Ollie is a gorgeous, happy and very smiley 4 year old little boy; he has 3 siblings who he loves to play with, they especially love football and he is a huge Liverpool supporter! Helicopters, Fire Engines and crisps are some of his favourite things but, like all little boys, he loves cuddles with his Mummy and Daddy the most.
Despite the smiles, however, Ollie is a very poorly little boy and he would like you to read about it in his very brave Mummy’s own words:
‘On Friday the 13th of February we were given the devastating news that Ollie has a very rare genetic illness called Late-infantile Batten Disease. It is estimated that there are only 30 – 50 children in the UK with this rare genetic condition. This cruel disease will rob our beautiful baby boy of the ability to walk, talk, swallow, play and see. batten disease is always fatal and children normally pass away between the ages of 6 and 12 years. There is currently no cure for this disease! As a family we are completely devastated and are trying to come to terms with this awful news. We are determined to do as much as we can to make sure that Ollie enjoys life as much as possible.’
Many celebrities have helped to support Ollie’s cause including Olly Murs, Kun Aguero, Rory McIllroy, Michael Vaughan to name but a few.
Please support this cause in any way possible. Here is a link to the website where you can find out more and donate to this devastating cause.